Tag Archives: 22q

1/21/2014 – Tomorrow the 22nd of the month is 22q@ZooWorld2 Awareness Day!

Every 22nd of the month is 22q@ZooWorld2!

For this month’s awareness day – The “22q Mystery Tour” is launched by the Dempster Family Foundation! Major League Baseball Pitcher, Ryan Dempster and the Dempster Family Foundation continues their 22q Mobile Awareness Campaign. 22q Deletion Syndrome is largely unknown to the general public and often goes undiagnosed for many years. Shortly after the birth of Ryan’s daughter Riley and learning of her diagnosis with this mysterious genetic disorder, the Dempster Foundation was launched. Celebrities jump aboard the bus to raise awareness about 22q Deletion Syndrome.

Check out this excellent audio interview with Ryan Dempster, 22q dad and Red Sox pitcher. About 5 minutes in they start talking about 22q! Also at the end is a montage of photos of 22q children and families from around the world!

http://www.youtube.com/watch?v=nIWD_ymve8g&feature=youtu.be

Have you seen the 22q Bus in your local area? Join all of us as we inform others and raise awareness of 22q11 Deletion Syndrome!

You can learn more about the “22Q Mystery Tour” here: http://www.22qbus.com/

Official 22q Site:  www.22q.org

22Q Campaigns and Projects that You Should Know About!
http://www.causes.com/causes/448594-22q-campaigns-and-projects-that-you-should-know-about?recruiter_id=44869168

For more information about 22q Awareness Day in Zoo World 2, please visit our blog: http://zooworld2.rockyou.com/blog/

Zoo World 2 dedicates the 22nd of every month as 22q@ZooWorld2 Awareness Day in Zoo World 2.

On January 22nd, look out for the special 22q Monument in front of the gate entrance to your zoo. Clicking on the 22q Monument will award you with Zoo Bucks every 1 hour. Be sure to spread the word to bring awareness about 22q11.2 deletion syndrome by sharing the information with your friends on your Facebook wall!

22q11.2 deletion syndrome is a chromosomal disorder that can include a wide range of health, physical and developmental issues, including heart defects, immune and growth deficiencies, speech problems, emotional and behavioral issues and learning disabilities in some individuals.

More information about 22q can be found by visiting the websites of these organizations: www.22q.orgwww.dempsterfoundation.orgwww.vcfsef.orgwww.c22c.org

Play Zoo World 2!

12/21/2013 – Tomorrow the 22nd of the month is 22q@ZooWorld2 Awareness Day!

Every 22nd of the month is 22q@ZooWorld2!

For this month’s awareness day – The “22q Mystery Tour” is launched by the Dempster Family Foundation! Major League Baseball Pitcher, Ryan Dempster and the Dempster Family Foundation continues their 22q Mobile Awareness Campaign. 22q Deletion Syndrome is largely unknown to the general public and often goes undiagnosed for many years. Shortly after the birth of Ryan’s daughter Riley and learning of her diagnosis with this mysterious genetic disorder, the Dempster Foundation was launched. Celebrities jump aboard the bus to raise awareness about 22q Deletion Syndrome.

Check out this excellent audio interview with Ryan Dempster, 22q dad and Red Sox pitcher. About 5 minutes in they start talking about 22q! Also at the end is a montage of photos of 22q children and families from around the world!

http://www.youtube.com/watch?v=nIWD_ymve8g&feature=youtu.be

Have you seen the 22q Bus in your local area? Join all of us as we inform others and raise awareness of 22q11 Deletion Syndrome!

You can learn more about the “22Q Mystery Tour” here: http://www.22qbus.com/

Official 22q Site:  www.22q.org

22Q Campaigns and Projects that You Should Know About!
http://www.causes.com/causes/448594-22q-campaigns-and-projects-that-you-should-know-about?recruiter_id=44869168

For more information about 22q Awareness Day in Zoo World 2, please visit our blog: http://zooworld2.rockyou.com/blog/

Zoo World 2 dedicates the 22nd of every month as 22q@ZooWorld2 Awareness Day in Zoo World 2.

On December 22nd, look out for the special 22q Monument in front of the gate entrance to your zoo. Clicking on the 22q Monument will award you with Zoo Bucks every 1 hour. Be sure to spread the word to bring awareness about 22q11.2 deletion syndrome by sharing the information with your friends on your Facebook wall!

22q11.2 deletion syndrome is a chromosomal disorder that can include a wide range of health, physical and developmental issues, including heart defects, immune and growth deficiencies, speech problems, emotional and behavioral issues and learning disabilities in some individuals.

More information about 22q can be found by visiting the websites of these organizations: www.22q.orgwww.dempsterfoundation.orgwww.vcfsef.orgwww.c22c.org

Play Zoo World 2!

11/21/2013 – Tomorrow the 22nd of the month is 22q@ZooWorld2 Awareness Day!

Every 22nd of the month is 22q@ZooWorld2!

Because of the way our understanding of the 22q11.2 deletion evolved, several different names continue to be used for what we now know to be the same condition. These older terms include DiGeorge syndrome (DGS), velo-cardio-facial syndrome (VCFS), conotruncal anomaly face syndrome (CTAF), Opitz G/BBB syndrome, and Cayler cardiofacial syndrome. Genetically speaking, there is no detectable difference in the microdeletions found in people with VCFS versus those with DGS or the other related syndromes. Individuals with these diagnoses all have the same underlying condition: the 22q11.2 deletion syndrome. The Foundation aims to bring us all together by educating the public and professionals about the deletion’s many names.


22q11 Deletion Syndrome is one of 7,000 rare diseases.

Official 22q Site:  www.22q.org

22Q Campaigns and Projects that You Should Know About!
http://www.causes.com/causes/448594-22q-campaigns-and-projects-that-you-should-know-about?recruiter_id=44869168

For more information about 22q Awareness Day in Zoo World 2, please visit our blog: http://zooworld2.rockyou.com/blog/

Zoo World 2 dedicates the 22nd of every month as 22q@ZooWorld2 Awareness Day in Zoo World 2.

On November 22nd, look out for the special 22q Monument in front of the gate entrance to your zoo. Clicking on the 22q Monument will award you with Zoo Bucks every 1 hour. Be sure to spread the word to bring awareness about 22q11.2 deletion syndrome by sharing the information with your friends on your Facebook wall!

22q11.2 deletion syndrome is a chromosomal disorder that can include a wide range of health, physical and developmental issues, including heart defects, immune and growth deficiencies, speech problems, emotional and behavioral issues and learning disabilities in some individuals.

More information about 22q can be found by visiting the websites of these organizations: www.22q.orgwww.dempsterfoundation.orgwww.vcfsef.orgwww.c22c.org

Play Zoo World 2!

10/21/2013 – Tomorrow the 22nd of the month is 22q@ZooWorld2 Awareness Day!

Every 22nd of the month is 22q@ZooWorld2!

Because of the way our understanding of the 22q11.2 deletion evolved, several different names continue to be used for what we now know to be the same condition. These older terms include DiGeorge syndrome (DGS), velo-cardio-facial syndrome (VCFS), conotruncal anomaly face syndrome (CTAF), Opitz G/BBB syndrome, and Cayler cardiofacial syndrome. Genetically speaking, there is no detectable difference in the microdeletions found in people with VCFS versus those with DGS or the other related syndromes. Individuals with these diagnoses all have the same underlying condition: the 22q11.2 deletion syndrome. The Foundation aims to bring us all together by educating the public and professionals about the deletion’s many names.


22q11 Deletion Syndrome is one of 7,000 rare diseases.

Official 22q Site:  www.22q.org

22Q Campaigns and Projects that You Should Know About!
http://www.causes.com/causes/448594-22q-campaigns-and-projects-that-you-should-know-about?recruiter_id=44869168

For more information about 22q Awareness Day in Zoo World 2, please visit our blog: http://zooworld2.rockyou.com/blog/

Zoo World 2 dedicates the 22nd of every month as 22q@ZooWorld2 Awareness Day in Zoo World 2.

On October 22nd, look out for the special 22q Monument in front of the gate entrance to your zoo. Clicking on the 22q Monument will award you with Zoo Bucks every 1 hour. Be sure to spread the word to bring awareness about 22q11.2 deletion syndrome by sharing the information with your friends on your Facebook wall!

22q11.2 deletion syndrome is a chromosomal disorder that can include a wide range of health, physical and developmental issues, including heart defects, immune and growth deficiencies, speech problems, emotional and behavioral issues and learning disabilities in some individuals.

More information about 22q can be found by visiting the websites of these organizations: www.22q.orgwww.dempsterfoundation.orgwww.vcfsef.orgwww.c22c.org

Play Zoo World 2!

09/21/2013 – Tomorrow the 22nd of the month is 22q@ZooWorld2 Awareness Day!

Every 22nd of the month is 22q@ZooWorld2!

Because of the way our understanding of the 22q11.2 deletion evolved, several different names continue to be used for what we now know to be the same condition. These older terms include DiGeorge syndrome (DGS), velo-cardio-facial syndrome (VCFS), conotruncal anomaly face syndrome (CTAF), Opitz G/BBB syndrome, and Cayler cardiofacial syndrome. Genetically speaking, there is no detectable difference in the microdeletions found in people with VCFS versus those with DGS or the other related syndromes. Individuals with these diagnoses all have the same underlying condition: the 22q11.2 deletion syndrome. The Foundation aims to bring us all together by educating the public and professionals about the deletion’s many names.


22q11 Deletion Syndrome is one of 7,000 rare diseases.

Official 22q Site:  www.22q.org

22Q Campaigns and Projects that You Should Know About!
http://www.causes.com/causes/448594-22q-campaigns-and-projects-that-you-should-know-about?recruiter_id=44869168

For more information about 22q Awareness Day in Zoo World 2, please visit our blog: http://zooworld2.rockyou.com/blog/

Zoo World 2 dedicates the 22nd of every month as 22q@ZooWorld2 Awareness Day in Zoo World 2.

On September 22nd, look out for the special 22q Monument in front of the gate entrance to your zoo. Clicking on the 22q Monument will award you with Zoo Bucks every 1 hour. Be sure to spread the word to bring awareness about 22q11.2 deletion syndrome by sharing the information with your friends on your Facebook wall!

22q11.2 deletion syndrome is a chromosomal disorder that can include a wide range of health, physical and developmental issues, including heart defects, immune and growth deficiencies, speech problems, emotional and behavioral issues and learning disabilities in some individuals.

More information about 22q can be found by visiting the websites of these organizations: www.22q.orgwww.dempsterfoundation.orgwww.vcfsef.orgwww.c22c.org

Play Zoo World 2!

08/21/2013 – Tomorrow the 22nd of the month is 22q@ZooWorld2 Awareness Day!

Every 22nd of the month is 22q@ZooWorld2!

For this month’s awareness day – The International 22q11.2 Deletion Syndrome Foundation continues the “22Q Mystery Tour”! The “22q Mystery Tour” launched by the Dempster Family Foundation! Major League Baseball Pitcher, Ryan Dempster and the Dempster Family Foundation continues their 22q Mobile Awareness Campaign. 22q Deletion Syndrome is largely unknown to the general public and often goes undiagnosed for many years. Shortly after the birth of Ryan’s daughter Riley and learning of her diagnosis with this mysterious genetic disorder, the Dempster Foundation was launched. Celebrities jump aboard the bus to raise awareness about 22q Deletion Syndrome.

Check out Lisa Jennings and her volunteers help raise awareness with Ryan Dempster about the 22q11.2 Deletion Syndrome! You can read more about it here:

http://www.wickedlocal.com/weymouth/news/x1808721879/Bus-drives-attention-to-disorder

Have you seen the 22q Bus in your local area? Join all of us as we inform others and raise awareness of 22q11 Deletion Syndrome!

You can learn more about the “22Q Mystery Tour” here: http://www.22qbus.com/

Also check out the Power of 2 challenge to help Support the Dempster Family Foundation send medically fragile children, diagnosed with 22q Deletion Syndrome for a week of summer camp at Dragonfly Forest free of charge! You can support and read more about the Power of 2 challenge here:

http://power-of-2.org/

Have you seen the 22q Bus in your local area? Join all of us as we inform others and raise awareness of 22q11 Deletion Syndrome!

You can learn more about the “22Q Mystery Tour” here: http://www.22qbus.com/

Official 22q Site:  www.22q.org

22Q Campaigns and Projects that You Should Know About!
http://www.causes.com/causes/448594-22q-campaigns-and-projects-that-you-should-know-about?recruiter_id=44869168

For more information about 22q Awareness Day in Zoo World 2, please visit our blog: http://zooworld2.rockyou.com/blog/

lisa

Zoo World 2 dedicates the 22nd of every month as 22q@ZooWorld2 Awareness Day in Zoo World 2.

On August 22nd, look out for the special 22q Monument in front of the gate entrance to your zoo. Clicking on the 22q Monument will award you with Zoo Bucks every 1 hour. Be sure to spread the word to bring awareness about 22q11.2 deletion syndrome by sharing the information with your friends on your Facebook wall!

22q11.2 deletion syndrome is a chromosomal disorder that can include a wide range of health, physical and developmental issues, including heart defects, immune and growth deficiencies, speech problems, emotional and behavioral issues and learning disabilities in some individuals.

More information about 22q can be found by visiting the websites of these organizations: www.22q.orgwww.dempsterfoundation.orgwww.vcfsef.orgwww.c22c.org

Play Zoo World 2!

Tomorrow the 22nd of the month is 22q@ZooWorld2 Awareness Day!

Hey Zookeepers!

Every 22nd of the month is 22q@ZooWorld2!

For this month’s awareness day – We would like to introduce the Global Genes Project because World Rare Disease Day happens this year on Feb 28 – March 1st (on years with a leap day it is Feb 29th).  Global Genes Project’s primary mission is to increase rare disease and genetic awareness worldwide and empower a vibrant rare disease community. The organization works to increase public and physician education, builds community through social media and is working to fund innovative ways to increase rare disease research.

Visit the Global Genes Project Fan Page for more information here: http://bit.ly/GlobalGenesProject

Some interesting facts:  http://globalgenes.org/rarefacts/

“30 million people in the United States are living with rare diseases. This equates to 1 in 10 Americans or 10% of the U.S. population. Similar to the United States, Europe has approximately 30 million people living with rare diseases. It is estimated that 350 million people worldwide suffer from rare diseases.”

22q11 Deletion Syndrome is one of 7,000 rare diseases.

The more we learn about this syndrome, the better we are able to help children learn to the best of their abilities!  Like and Share this post to spread the word!

Official 22q Site:  www.22q.org

22Q Campaigns and Projects that You Should Know About!
http://www.causes.com/causes/448594-22q-campaigns-and-projects-that-you-should-know-about?recruiter_id=44869168

Zoo World 2 dedicates the 22nd of every month as 22q@ZooWorld2 Awareness Day in Zoo World 2.

On February 22nd, look out for the special 22q Monument in front of the gate entrance to your zoo. Clicking on the 22q Monument will award you with Zoo Bucks every 1 hour. Be sure to spread the word to bring awareness about 22q11.2 deletion syndrome by sharing the information with your friends on your Facebook wall!

22q11.2 deletion syndrome is a chromosomal disorder that can include a wide range of health, physical and developmental issues, including heart defects, immune and growth deficiencies, speech problems, emotional and behavioral issues and learning disabilities in some individuals.

More information about 22q can be found by visiting the websites of these organizations: www.22q.orgwww.dempsterfoundation.orgwww.vcfsef.orgwww.c22c.org

Play Zoo World 2!